FAQ

  • A rare disease is any disease that affects a small percentage of the population.

    In the United States, any disease, illness, disorder, or condition affecting fewer than 200,00 is considered rare.

    Both the European Union and World Health Organization (WHO) define a rare disease as affecting fewer than 1 in 2,000 people.

    There are over 10,000 rare diseases, and it’s estimated that about 10% of the world’s population has a rare disease diagnosis.

  • We’re looking for personal stories from patients, caregivers, medical professionals, and industry allies from the rare disease community.

    Please review our Submission Guidelines.

  • We’re seeking stories that are authentic, relatable, and offer a meaningful takeaway at the end.

    We ask that you share your authentic and honest experiences of living with a rare disease—or providing care or treatment for someone who does.

    Please review our Writing Tips & Story Ideas for story ideas.

  • Please review our Submission Guidelines for helpful guidance, including story length, point-of-view, citing any sources, and formatting.

    Once you’ve finished your story, you may submit your work to editor@writersforrare.com.

  • We’re unable to offer monetary payment to our contributors. If your story is chosen for inclusion in our anthology, you’ll receive a free print copy of Writers for Rare after publication.