Writers for Rare:
An Anthology of Personal Stories From the Rare Disease Space
Featuring thirty-two unique perspectives from patients, caregivers, clinicians, and allies.
Coming September 16, 2025.
“The stories shared within these pages are a testament to the other side of ‘rare’ and offer a unique opportunity to enter a world that many see, but few understand.”
— Matthew Demczko, MD, Clinical Education & Fellowship Director and Inpatient Service Director with the Mitochondrial Medicine Program at Children's Hospital of Philadelphia
Background image from original artwork: Liz Pollock, Bound for Breakthrough, 2024.
Writers for Rare is the creative endeavor of Patricia Geurds and Patricia Sullivan, both of whom are personally touched by the rare disease experience.